Real-life disability and caregiving don’t come with a manual...
.... So we built the one we needed.

About Us & ISAN

Disability, chronic illness, PTSD, TBI, and caregiving reshaped our marriage, our identities, and the way we moved through the world. We didn’t choose this path but we've learned how to navigate it together.
In Sickness and Nevermind exists because we know how isolating this life can feel. We know what it’s like to search for resources that don’t exist, to feel misunderstood by people who mean well, and to carry responsibilities no one prepared you for.
This space is our way of saying: you’re not alone, and you’re not imagining how hard this is.

Shawna

I’m a disabled Veteran turned multimedia artist, medically retired from the U.S. Army in 2011 after becoming sick during a deployment to Iraq in 2010. My spoonie journey began with seizures overseas and spiraled into years of unanswered questions, hospital stays, and relentless self-advocacy.
Seven years later, in 2018, I finally received a diagnosis: Myasthenia Gravis, a neuromuscular autoimmune disease that explained the weakness, fatigue, and unpredictability that had taken over my life.
But MG is only part of the picture. I also live with:
- PTSD from MST
- Cervical dystonia
- Chronic pain and partially herniated discs
- Fibromyalgia
-Neuropathy
- Asthma COPD from long-haul COVID
- A seizure disorder
After my medical retirement, I studied graphic design, discovered a love for sculpting, and began volunteering as an art instructor at the Travis Mills Foundation. I worked as a graphic designer, bought a print shop in 2020 to save it during COVID, and ran it for 18 months — until my body made it clear that the pace was unsustainable. A myasthenic crisis in 2021 landed me in the ICU for a week and forced me to accept that traditional employment was no longer possible.
Then I forgot that lesson a year after moving to Wisconsin and opened up another physical location, a coworking and office center called The Nook. In April 2025 I suffered another MG crisis and spent another week in the ICU. I had to close that business too. I'm doing my best to remember the lesson that my body just won't do "traditional employment". Around the same time, I was struck with inspiration to start writing fiction under the pen name Nikki Mayo. it's been a wild ride!
There’s grief in that. There’s identity loss. There’s frustration, fear, and a constant negotiation between what my body wants and what my life requires.
But there’s also resilience. Humor. Adaptation. And a deep understanding of what it means to rebuild yourself from the inside out.
Now, I use my artistic and design skills to run this blog, write for Myasthenia Gravis News, and serve as an ambassador for the Travis Mills Foundation. This work lets me give back in a way my body can sustain — and it keeps me connected to the communities I care about most.
Read Shawna's column at Myasthenia Gravis News
Go to MG News
Learn more about the Travis Mills Foundation (TMF)
Go to the TMF
Check out my author journey
Go to Nikki Mayo

Justin

Justin is my husband — and my caregiver through the VA. He’s also a personal trainer and fitness coach with a passion for helping people with disabilities find accessible, adaptive ways to move their bodies.
His TBI journey began the day a dead tree, a “widow maker”, fell on his head while he was clearing land with his stepson, Caden, in 2016. The impact shattered his logging helmet. If he hadn’t been wearing it, he likely wouldn’t be here today.
The injury layered onto years of tackle football, childhood falls, and cumulative head trauma, leaving him with long-term symptoms that reshaped his life.
Justin started coaching as a youth football coach, then interned at Hybrid Fitness while earning multiple certifications. He later joined Beth Feraco Fitness as an assistant coach until early 2026, when the demands of the role became too much.
In April 2024, he opened Country Strength in Cable, WI — a space dedicated to adaptive fitness, creative problem-solving, and helping people with chronic illness or disability pursue their best quality of life. He continues to give back to the TBI and chronic illness communities through coaching, advocacy, and lived-experience support.
Learn more about Country Strength
Go to Country Strength

How We Met

Believe it or not, we met on Match.com.
When I first got out of the Army, my health was unstable. I had moved back in with my parents, couldn’t drive because of seizures, and figured online dating was the safest way to meet someone.
Justin messaged me about a phoenix tattoo barely visible in one of my photos. I almost didn’t reply — some of his pictures made him look like a total goofball — but something nudged me to give it a chance.
He lived four hours away, but he made the drive to meet me. We took a walk in the woods and laid everything out: my health issues, his job loss, our baggage, our hopes. Neither of us ran.
Adult female sitting in a wheelchair dressed in a wedding dress with an adult male supporting her wheelchair behind her.
Two years later, on August 10, 2013, we got married in northern Maine.
Justin has only ever known me in my current state — not healthy. That reality is actually where the name In Sickness and Nevermind came from.

Why ISAN Exists

ISAN started as a podcast — our attempt to talk openly about disability, caregiving, marriage, and the messy middle of life. But as my MG progressed and affected my vocal cords, recording became harder, and the podcast fizzled
In April 2022, after moving from Maine to Wisconsin, we decided to revive ISAN as a blog and resource hub. The slower pace of life helped my health stabilize, and I realized I could pour my energy into something meaningful without burning out.
So I spearheaded the reimagining of In Sickness and Nevermind — not as a polished brand, but as a lived-experience space for people like us.
We created ISAN because we couldn’t find a space that spoke honestly about the realities of disability and caregiving — the emotional landmines, the relationship strain, the identity shifts, the exhaustion, the grief, the humor, the resilience, and the moments that make you feel both deeply human and completely undone.
We wanted a place where:
- disabled people feel seen
- caregivers feel understood
- couples feel less alone
- and everyone feels equipped with tools that actually help
This isn’t a clinical resource. It’s a lived-experience one. It’s the manual we needed and the community we wished existed.

About Our Logo

Our logo is a modern interpretation of the Valknut, an ancient Norse symbol made of three interlocking triangles. Traditionally, the Valknut represents connection, endurance, and the invisible threads that bind people through hardship, transformation, and the unknown.
For us, it became the perfect visual metaphor for life with disability and caregiving — not because of mythology, but because of what the shape represents:
Three distinct parts, permanently linked.
Three identities, three journeys, three truths; all connected, all influencing one another, all stronger together than apart.
We adapted the Valknut to reflect the heart of In Sickness and Nevermind, using colors that carry deep personal meaning:

Caregivers

The purple triangle.
Purple is the awareness color for caregivers, the often-invisible backbone of disability and chronic illness communities. This triangle represents the emotional labor, the love, the exhaustion, the identity shifts, and the quiet heroism of caregiving — especially male caregiving, which is rarely acknowledged or supported.

Myasthenia Gravis

The teal triangle.
Teal is the awareness color for Myasthenia Gravis, the neuromuscular autoimmune disease that reshaped Shawna’s life and became a defining part of her health journey. This triangle represents the disabled partner — the body that works differently, the resilience required to navigate chronic illness, and the lived experience that fuels so much of ISAN’s honesty.

TBI

The green triangle.
Green is the awareness color for TBI (Traumatic Brain Injury), honoring Justin’s journey after a life-altering head injury. This triangle represents the survivor’s path — the cognitive shifts, emotional changes, and invisible challenges that come with brain injury. It symbolizes adaptation, strength, and the creativity required to rebuild a life after trauma.

Why the Valknut

The Valknut is more than a design, it’s a reflection of our lived reality. Three identities, one shared life. Three challenges, one partnership. Three stories, one community.
The triangles interlock the way our experiences do: disability affects caregiving, caregiving affects identity, identity affects relationships, and all of it shapes the way we move through the world.
Nothing stands alone. Everything is connected.
This logo is our reminder — and yours — that even in the hardest seasons, we are woven together by resilience, love, and the willingness to keep showing up.
The full logo for In Sickness and Nevermind. It features the purple, teal, and green interlocking Valknut symbol prominently at the top with a white border. Below the symbol, the brand name "In Sickness and Nevermind" is written in its signature black calligraphic font, with the text slightly overlapping the bottom-right of the graphic.
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